More Questions, Making a List


11:45 AM 10/12/22

I did get SOME questions answered this morning with Dr. Umberhandt, Ezrah's Orthopedic Doctor. (Since yesterday, we seem to have more.) We are not 100% out of the woods with cancer, but we're in a better place than we WERE. If this things grabs enough of the tissue...(untreated) it CAN take a turn. He believes our best bet is treating with the antibiotics right now and "see what happens." WE ARE TREATING. He just kept saying "this is so tough." It's NOT black and white. There ARE unknowns.

These are our prayer requests:

A) this thing responds to meds.

B) Ezrah STAYS healthy. 

C) these meds don't effect puberty or gut negatively. 

D) Ezrah. She HATES these meds and her diet is TERRIBLE right now. We are just trying to get FOOD in her right now. She is TINY. We need her eating. 

E) that this is not a lifelong battle for her.

F) that her other bones/joints remain pain free.

We have taken the funds donated to us and used them for the time Tony has taken off of work, AS WELL as started an account for Ezzie's meds/treatment. WE ARE NOT ASKING FOR ANY DONATIONS. (Please know my heart there.) I just want people to know that is how we've allocated that money. We are SO grateful.

I will update the meal train. I believe we may need a meal next week for the other kids if we end up having multiple appointments. (We are trying to meet with Orthopedic, Rheumatology, and Infectious Disease on the same day.) In a perfect world, right?

As always...Thank YOU. 

As always....those words will never seem enough. 

Comments

  1. Nadine SchwartzOctober 12, 2022 at 2:14 PM

    What is your PayPal address? Would love to send a little to help you out!! Praying for your sweet girl.

    ReplyDelete
  2. AnonymousOctober 12, 2022 at 2:44 PM

    I know this blog is partly therapy for you but we appreciate the updates so much. We love your family and think about you and pray for each of you. Thank you for keeping us in the loop. We’re feeling hopeful!

    ReplyDelete
  3. AnonymousOctober 12, 2022 at 3:26 PM

    Continuing to pray for your sweet girl.

    ReplyDelete
  4. AnonymousOctober 12, 2022 at 3:43 PM

    Thank you so much for the updates! Will keep praying and will drive the meal train anytime!!

    ReplyDelete
  5. Katie JenksOctober 12, 2022 at 4:04 PM

    Ezrah and your entire family are in my prayers, friend. Thank you for taking the time to post to update us!! You are loved!

    ReplyDelete
  6. Lauren VandermeerOctober 12, 2022 at 7:27 PM

    Thank you for sharing! So grateful with you for this clarity. Continuing to pray and send so much love!

    ReplyDelete
  7. Sandi BoudreauOctober 13, 2022 at 8:23 PM

    Adore you always and all your family and precious Ezrah! Big hugs. Prayers for these things!

    ReplyDelete

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