Emergency Room Sunday


Our Sunday morning has been spent with about 73 other Portlandians in the Emergency Room at Randall's Children's Hospital. (Not where we wanted to be. Eww.) But, yesterday, Ezrah started breaking out with a rash covering her entire body and this morning her lips and face were swollen and covered in BIG, red blotches. So, in we went to the ER. We ain't messin' around!

The doctors aren't 100% sure if this is an allergic reaction to her medication, which apparently CAN happen in week 4, OR something viral that her body is fighting. Again, our little anomaly has everyone scratching their heads...and her scratching literally everywhere!

Because her white blood cells were low on Tuesday, they did another full panel of bloodwork today. (She HATES needles at this point. But, today's nurse was great at listening for EZRAH'S voice, even if it took a bit to find.)

So...we are switching medications to treat the bone infection. Waiting. Waiting. We are praying she doesn't have a reaction to the new meds and that we can try to get her comfortable. She's bought herself another night of sleeping in mom and dad's room!

Comments

  1. AnonymousNovember 6, 2022 at 3:13 PM

    I’m so sorry. I wish, wish, wish I could just make it all right for each of you❤️

    ReplyDelete
  2. Angel SNovember 6, 2022 at 3:39 PM

    Poor Sweet Ezzie. Sending up prayers for the great healer to calm down her immune response so she gets some itching relief, that she feels the peace of God when she has to face the unpleasantness that is often the preface to healing, and that her cup of comfort is filled to abundance in your room under the close watch of mom and dad and the perpetual great hand of our Father. I love you guys more than you know and I am here in this space of waiting alongside you helping to hold your hands up to Him who can.

    ReplyDelete
  3. AnonymousNovember 6, 2022 at 3:45 PM

    Sending love and prayers 💜🙏

    ReplyDelete
  4. AnonymousNovember 6, 2022 at 5:00 PM

    Goodness ! We are praying for her . Praying for solid answers!

    ReplyDelete
  5. AnonymousNovember 6, 2022 at 5:04 PM

    You did good, momma…praying that God continues to give you what you need. He’s never early…or late.

    ReplyDelete
  6. AnonymousNovember 6, 2022 at 5:28 PM

    🙏🏼🙏🏼🙏🏼

    ReplyDelete
  7. AnonymousNovember 7, 2022 at 7:30 AM

    Poor little thing. Prayers for all.

    ReplyDelete
  8. Lori KnightNovember 14, 2022 at 10:11 AM

    Lifting up prayers of relief and answers for sweet little Ezrah and for you too!!!!

    ReplyDelete

Post a Comment

Popular posts from this blog

Back at OHSU for a JAUNT

Image
 December Update - Kinda a big one.  Few people know, but Tony had another recent "flare-up" with his "sub-par," VERY damaged pancreas that began on Sunday and lasted two days. (Yes, he took his citizenship test in pain, cause you don't reschedule with the USCIS.) But, we aren't messing around, and so today (Wednesday) we found ourselves back at OHSU for a check-in. (Remind me to make a PowerPoint Ted Talk on TRAUMA/PTSD.)  We left OHSU with a better plan on how to manage these "flares" so that in the future, he doesn't have to miss MORE work time. (2 days off this week) And we left with future lab draws for some genetic testing. Jury says this is all still "idiopathic".... so, in a true episode of "House" fashion, we're still "guessing" on what to stay away from as far as nutrition. But, this was the VERY first time we'd heard about options should this ever become chronic and/or progressively worse. There
Read more

Another surgery for Tony on 6/10

Image
Well, village... we come to you today with another update/prayer request. After the ultrasound procedure that Tony had in March, it was discovered that he has some "sludge" in his gallbladder, which CAN be a precursor for another round of pancreatitis. (Apparently, sludge is not something most people have, and given "the perfect storm," it COULD land him back into a lengthy stay at OHSU, or God-forbid, worse.) Tony met with a surgeon on Tuesday, and it has been strongly advised that he has his gallbladder removed to eliminate that as a possibility. Surgery is set for June 10th at OHSU. If you know Tony, he is, of course, trying to wrangle anyway he can to get back to work for financial reasons in LESS than the three week sentencing. Although it will be a robotic surgery with four incisions, the down time is 3 weeks. Best case scenario. He also feels like he's FINALLY back to his fighting weight and FULLY recovered, so, to him, this feels like a MAJOR setback. Un
Read more

Angiogram Procedure on 3/20

Image
It's been a minute. Isn't that just AWESOME?! I've been wanting to come on here and share the latest... We're coming up on the one year mark of Tony's initial hospital admission. March 28th, to be exact. Often, it feels like yesterday. But, sometimes, it feels like a lifetime ago. Because of that, doctors are choosing to do some recon and "check" on things. Tony will undergo an angiogram on March 20th at OHSU. The procedure is supposed to be 2-4 hours, and I'm sure you remember how well he does with those!? (Not well at all. They ALWAYS take longer, with a few hiccups in the past. We've lost count, but I think this will be the 5th one.) My guess is a CT will be around June/July to further check his pancreas. With the new year comes new out-of-pocket maxes and deductibles. But, we believe this is necessary for some peace of mind and to make sure staying off all medications is best. We are hopeful this will just be a quick in and out procedure. Would
Read more