Ezrah JOY's Fight

The three of us (T, B, E) plus LUNA LOVEGOOD loaded up for the trek to Randall's to visit Doctor Bob and go over Ezrah's CT Scan from Tuesday. As you can see, Ezrah did better with her pup by her side. (You could SEE her smile under her mask!) Luna was a hit and did AWESOME.  Dr. Bob loved meeting her and Ezrah honestly seemed so much more at ease. It amazes me what this dog has done for all of us! Dr. Bob DID see something in the scan and he believes that Ezrah has an Osteoid Osteoma. (This was the moment I started sweating and needed Luna!) Here's the thing: The symptoms match. The pain level matches. The bone SHOWS *something* there outside of the portion he removed during surgery and it's textbook. He had a 2nd set of eyes confirm what he saw, and we are being referred for further treatment. Treatment has 2 options: 1. We treat with a non-steroidal drug nightly. (Advisl or Naprosyn) Essentially we try to tackle this at home on our own. 2. Ezrah has an ablation of th

They say kiddos who've spent a stint in the hospital, or with medical issues just get used to all the tests, pokes and prods. Eventually. "They" say.  It's been over 5 months, and Ezrah still hasn't. Nothing about ANY of this feels normal and not scary. I'm not sure she will ever get "used to" it. I do think she's surprised herself and ALL of us with her resilience. She just. keeps. going. She's done everything she's been asked of. But, there's fear. And THAT is something I will never unsee. It's not fair. Please hear me, there are those suffering SOOOO much worse. I know this well. It's not a competition with who's fear or ailment trumps the other. FEAR is valid. And life is FRAGILE. BUT.... When you see FEAR in your child's eyes. When they become paralyzed to find words. When they tip their head down and just look at their shoes. When the tears well up. When the mask hides their trembling lips. When the cold, sterile

 *our tradition after these visits is a trip to Barnes & Noble for the book lover* Dr. Bob was amazing as always. BEST ORTHOPEDIC DOCTOR IN ALLLLL OF THE LAND! Hands down. (He even gave us permission to bring Luna to Ezrah's next visit!  Ezzie told Dr. Bob, "but, she's not fully potty trained!" He jokingly said, "some of the people here aren't either! Bring her in. I need to meet Miss Luna.") *tears* (Did I mention he's from Tennessee? Everything he says in that southern drawl is so much easier to hear.) I can't tell you how different Luna would make these appointments for her. There is a LOT of BIG talk and rightfully, BIG fears. But, he's great at talking her down off ledges and we adore him. The Nitty Gritty: A CT scan has been ordered and should take place next week. (Tried to get in for it today, but, oh hey INSURANCE hoop! How ya doin'?) Dr. Bob believes Ezrah's leg is trying to create bone on bone tumors. There's a fanc

*I found this older pic of Ezzie while scrolling and looking for a picture to share, and gah, it just sums up my girl. Always joyful. Caring and loving to others. Her smile has always been contagious. Her middle name is JOY and she is her namesake. Ezrah JOY. Her sparkle has dulled though. These last 5 months have been hard, and these last 6 weeks, since her first medical reaction, I've seen the first signs of weariness. Exhaustion. She's tired of it alllll. Who can blame her?   With that...here's the latest: Ezrah saw the Opthamalogist last Friday for the Uveitis that occurred the previous weekend. On FRIDAY, she had ZERO signs of lingering inflammation in her eyes, so we were basically told to go home and call the on-call Opthamalogist before doing ANY at home treatments if it happens again. (Since this has occurred intermittently since 2020, I've had drops on hand (her prescription from 2020) that always nip it at the first sign.) Dr. Olsen was incredibly kind and un