Finding Our New "Normal"

5/10 - Day 5 at home, The Shire

The Home Health nurse has visited twice now. The main objective is for them to check the drain, restock my supplies, check Tony's vitals, and do an overall well-check. He's officially lost 34 pounds. He's feeling a little bit better every day, and some days, we walk together down the driveway TWICE. This gorgeous weather helps...AND I believe it's helping his spirits also.

He rode the stationary bike for a bit today. But, the exertion does take a toll, and he needs a daily nap. He is just so incredibly weak.

PT will come here Friday. He briefly picked up a racket yesterday and started doing his famous "mock swings" before I yelled at him for any ab- torsion that might pull that drain out. Nurse Nelson isn't messing around. The doctors told him too. (The real ones.) He's NUTS! Send a psychiatrist. 

Which brings me to Exhibit B and C. (Not the psychological part) I have the best friends who support and ENCOURAGE my shenanigans. (I'm completely sane. Tired. Incredibly tired. But, sane.) They had this medical coat and PURPLE scrubs gifted to me. 💜 INSCRIBED, no less. It's official cause my white coat says so. Dr. Nelson at your service.

Sadly, our house has been hit with the plague. (I've tested negative for Covid twice) But Elijah has strep throat, and I can't seem to kick this cold. I know my body's just like, "nah girl, you're exhausted. Let's MAKE you rest." We really are just trying to keep Tony and Amelia (who has District's for tennis on Friday and Saturday) as healthy as possible. 

What a unique experience to have Tony home and medically fragile at the same time. The girls love it! We are still trying to find a groove and routine under the circumstances. Micah still has school, drop-offs, and pick-ups. Amelia has tennis. I'm working on more homeschooling with the girls. 2 kids had orthodontist appointments today. Elijah's banished to the "isle of misfits" (his room) where I occasionally throw food in until he's no longer contagious. All the while attending to Tony's meds and drain 4 times a day. It's a lot. But, we're together.. and that fills my heart with such JOY. I'll take "tired," as long as my people are home. What a beautiful overwhelm. Life is so beautifully precious and so painstakingly fragile. Hug your people. Trust. Hug them right now... I'll wait.