Trucking Along...
(A last ditch effort to rendezvous in Seaside and beat the PNW heatwave)
*UPDATES*
9/1
Ezrah's recent surgery couldn't have gone better. Her pain was minimal, recovery was smooth, and we REALLY thought the cryto ablation worked... until the pain on her tibia returned the night of the 27th, 28th, 29th, 30th, and again last night. It's the same pattern.
She feels ok during the day, but at night, the nerves start firing, and sleep becomes elusive. SUPER common response to an Osteoid Osteoma. We have a routine Rheumatology check up at Randall's next week with MORE intel to show from the summer (circulation issues and random swelling joints), but, alas, I'll be shocked if we get an auto-immune diagnosis. The rheumatologist simply says her symptoms, "Don't add up." The cycle/runaround is never ending.
Tony is stable. His diet is SUPER restricted, but he's had no issues since our last visit where the drain was removed. His lifestyle has done a 180, though, for the better. He's working less (only 40 hour work weeks now), and we get to see him a lot more. Our insurance is STILL denying our last hospital stay of 5 days at OHSU's B&B. Another "sit tight and wait" moment while they try to get on the same page with OHSU. We can't pay it. It's astronomical.
Elijah is working as a pro. He travels to AZ in a few weeks for a national tennis tournament. His car accident (nearly 1 year ago) is still being "settled" with their attorneys. We STILL don't know how that will pan out.
Amelia is entering her senior year of high school (still doing school at home) and working a TON at Orange Theory. (If anyone wants to join me there in September, they're doing a fantastic promotion. Best EVER!) She also works one day a week at the tennis center.
Micah started back as a SOPHOMORE at CAM Academy yesterday. He takes all the hard classes and decided a computer science ZERO period was a good idea. He's driving now AND playing tennis for Prairie High School.
Ezrah, Aurora, and Matilda are getting ready to start another year of homeschooling at The Nelson Academy. Don't ask me what grades they're in. We just do the school. But, I think somewhere around 8th, 5th, and 2nd.
It's been such a hard season. Grateful for Luna Lovegood (our nearly 11 month old German Shepherd) and our village. I KNOW I've been elusive and unresponsive. I'm grateful for EVERY check-in. I'm just struggling to find my footing. I'm still here.
As always, thank you for reading my novel, for those taking care/thought of Tony at VTC, for all the prayers for Ezzie. We. Are. Grateful.
Bonus pic because how could you NOT melt!?
(LLG'a first SPA DAY)
Always thinking about the Nelson’s and praying for your health
ReplyDeleteI think of all you almost daily and Will continue praying! ❤️
ReplyDeleteThanks for the update!! I think about you all time and have been hoping that your family is all doing well! Heidi P
ReplyDeleteI see Ezrah gets her toes from the Kern side if the family. Nice to see Tony's smile. Hopefully we will see you at grandma's memorial
ReplyDeletePraying for Ezrah. Love ❤️
ReplyDelete