Angiogram Procedure on 3/20


It's been a minute. Isn't that just AWESOME?!

I've been wanting to come on here and share the latest...

We're coming up on the one year mark of Tony's initial hospital admission. March 28th, to be exact. Often, it feels like yesterday. But, sometimes, it feels like a lifetime ago. Because of that, doctors are choosing to do some recon and "check" on things. Tony will undergo an angiogram on March 20th at OHSU. The procedure is supposed to be 2-4 hours, and I'm sure you remember how well he does with those!? (Not well at all. They ALWAYS take longer, with a few hiccups in the past. We've lost count, but I think this will be the 5th one.) My guess is a CT will be around June/July to further check his pancreas. With the new year comes new out-of-pocket maxes and deductibles. But, we believe this is necessary for some peace of mind and to make sure staying off all medications is best. We are hopeful this will just be a quick in and out procedure. Would LOVE prayer that day...and the days following...and the days leading up to...


Ezrah Joy, My beautiful 5'8", 13 year old! She grew over 2 inches in two months, so I'd say her bone health is doing AWESOME. She meets fairly regularly with Rheumatology, but her medication is WORKING, and she's resumed life as a normal teen, for the most part. Her latest labs were eye-opening for me. Some of the stuff they can point on with her bones and inflammation are CRAZY. I am so grateful for modern medicine and doctors that CARE. She really has the BEST team at Randalls. So far, she's had no note-worthy flare-ups, and her inflammation has been at bay. 

Short update from me. Not gonna lie, not totally thrilled to get back on the roller-coaster. Praying the ride this time ends somewhere tropical. 🤣

If you're reading this, you're a part of our village, and as always, that brings us to our knees in gratitude. 💜

Comments

  1. AnonymousFebruary 26, 2024 at 4:02 PM

    Oh girl, I get what your are experiencing. The roller coaster with Kevin is crazy and now know it will be probably for the rest his life. Praying for you and your family. Hugs my friend.

    ReplyDelete
  2. AnonymousFebruary 26, 2024 at 4:57 PM

    Hopefully your birthday wishes all come
    true ♥️ Love you! Aunt Kathy

    ReplyDelete
  3. AnonymousFebruary 26, 2024 at 10:58 PM

    Girlfriend and coolest family. All will be well❣️You all have had enough❤️❤️❤️❤️TL

    ReplyDelete
  4. AnonymousFebruary 27, 2024 at 3:50 AM

    I just love you Becks. So very grateful that Tony’s AND Ezrah’s health is good right now and that you haven’t had to be on high alert 24/7. Thankful that you guys can just breathe a bit. Will definitely be praying for Tony’s procedure as well as the before and after. Continuing to pray for YOUR heart too, as you’re carrying the emotional mama/wife bear load of all this. Love your fam to pieces. 💕

    ReplyDelete
  5. AnonymousFebruary 28, 2024 at 6:05 AM

    Huge hugs and continued prayers. So much love 💖🥰💖

    ReplyDelete
  6. AnonymousFebruary 28, 2024 at 9:59 PM

    Continuing to pray for you guys!

    ReplyDelete
  7. AnonymousMarch 2, 2024 at 11:21 AM

    So grateful you get to have some more answers!

    ReplyDelete

Post a Comment

Popular posts from this blog

Back at OHSU for a JAUNT

Image
 December Update - Kinda a big one.  Few people know, but Tony had another recent "flare-up" with his "sub-par," VERY damaged pancreas that began on Sunday and lasted two days. (Yes, he took his citizenship test in pain, cause you don't reschedule with the USCIS.) But, we aren't messing around, and so today (Wednesday) we found ourselves back at OHSU for a check-in. (Remind me to make a PowerPoint Ted Talk on TRAUMA/PTSD.)  We left OHSU with a better plan on how to manage these "flares" so that in the future, he doesn't have to miss MORE work time. (2 days off this week) And we left with future lab draws for some genetic testing. Jury says this is all still "idiopathic".... so, in a true episode of "House" fashion, we're still "guessing" on what to stay away from as far as nutrition. But, this was the VERY first time we'd heard about options should this ever become chronic and/or progressively worse. There
Read more

Another surgery for Tony on 6/10

Image
Well, village... we come to you today with another update/prayer request. After the ultrasound procedure that Tony had in March, it was discovered that he has some "sludge" in his gallbladder, which CAN be a precursor for another round of pancreatitis. (Apparently, sludge is not something most people have, and given "the perfect storm," it COULD land him back into a lengthy stay at OHSU, or God-forbid, worse.) Tony met with a surgeon on Tuesday, and it has been strongly advised that he has his gallbladder removed to eliminate that as a possibility. Surgery is set for June 10th at OHSU. If you know Tony, he is, of course, trying to wrangle anyway he can to get back to work for financial reasons in LESS than the three week sentencing. Although it will be a robotic surgery with four incisions, the down time is 3 weeks. Best case scenario. He also feels like he's FINALLY back to his fighting weight and FULLY recovered, so, to him, this feels like a MAJOR setback. Un
Read more